It’s crazy to believe that it has already been 1 year since Noah’s diagnosis of Mucopolysaccharidosis II, AKA Hunter Syndrome. It felt like it was just yesterday when we heard the gut wrenching news that our son has a horrific disease which would slowly rob him from his life. Since then, it has been an emotional rollercoaster with several life changing events: going through the depression of new diagnosis, being in the middle of a major career change, preparing ourselves for