Noah continues to learn new things everyday, but we are beginning to notice subtle changes in his speech and behavior in the last couple...

It’s crazy to believe that it has already been 1 year since Noah’s diagnosis of Mucopolysaccharidosis II, AKA Hunter Syndrome. It felt...

Since finding out about Noah's diagnosis, I just knew Noah would need a port placed for the upcoming/long-term weekly enzyme replacement...

Noah never really called for mommy or daddy. Although he repeated sounds like "mama" and "dada", he never really linked the words to us...

All my life I was taught to love God and to trust in God. I was baptized a Roman Catholic, received communion, practiced penance,...